AYA CAN is a peer-led national organization advocating for Canadian adolescents and young adults (AYA) affected by cancer. Their mission is to advocate for an equitable and integrative system of care to improve the experiences of Canadian adolescents and young adults affected by cancer. They do so by collaborating with governmental, academic and community non-for-profit organizations, hosting tri-annual web conferences, facilitating knowledge translation of the unique needs of AYAs affected by cancer, and writing support letters.
PROFYLE has recruited many of Canada’s leaders in pediatric, adolescent and young adult cancer research and care. Our multidisciplinary team consists of more than 50 investigators and collaborators, all working to improve the outcomes of young Canadians with high-risk cancers. In the past, if a child battling cancer lived in a region without a molecular profiling site, accessing this was not an option. PROFYLE is breaking down barriers, giving young people who need it the most access to the best cancer care in Canada. For example, a child enrolled in the study will have his or her tumor sample sent to one of three profiling sites in Canada. The results are then discussed at a molecular tumor board – and if the patient meets criteria for a clinical trial suitable for their cancer they will be enrolled.
Hope & Cope helps people cope with cancer. Guided by professional staff, cancer-experienced volunteers provide psychosocial support and practical resources that help patients regain a sense of control and well-being, reduce isolation and restore hope. Easily accessible and open to all, Hope & Cope is funded by the community and is located at the Jewish General Hospital’s Segal Cancer Centre and the Hope & Cope Cancer Wellness Centre.
Canuck Place Children’s Hospice opened its doors on November 30, 1995 to become the first free-standing hospice in North America—now recognized internationally as leaders in pediatric palliative care. The need for our services has grown exponentially over the years, and we now have two locations serving the province of BC—in Vancouver and Abbotsford. The program includes pain and symptom management, medical respite, education and art, music and recreation therapy, end-of-life care, and grief and bereavement counselling. All at no cost to families.As a non-profit organization, our extended team includes corporate, community, and government partners. Thanks to them, our dedicated staff, and generous volunteers, we make a profound difference to a growing number of children and families throughout BC and the Yukon.
The National Comprehensive Cancer Network is a not-for-profit alliance of 32 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, equitable, and accessible cancer care so all patients can live better lives. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. By defining and advancing high-quality cancer care, NCCN promotes the importance of continuous quality improvement and recognizes the significance of creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers around the world.
U-Link.care was launched to improve access to clinical trials of new and innovative cancer therapies for Canadian childhood cancer patients. Given that Canada is an expansive country, patients and families may be required to travel great distances to access clinical trials. Recognizing this unique challenge, U-Link.care also functions as a resource to help decrease the financial burdens on patients and their caregivers when travelling for treatment.
Sign up for updates on what we are doing to create meaningful opportunities for our youth, upcoming events, award recipients and more.